@Semavav aka Annemarie Matulis chats #Jan13 9pmET #ACalltoAction #ImpactedFamily #Marginalized #Traumatized Who are they? Could “they” be “you”?

January 13, 2019 9:00 pm ET  (please note change to Eastern Time!)

Marginalized: adjective

  1. (of a person, group, or concept) treated as insignificant or peripheral.

Unpleasant word. Unpleasant feeling.

The aftermath of a catastrophic event – a tornado, a hurricane, an earthquake, tends to bring out the best in humanity. Neighborhoods and entire communities come together as never before. Complete strangers reach out to help each other through the challenging, emotional darkness.

But when the perceived catastrophe is a personal tornado, hurricane or psychological earthquake as the result of a loved one’s suicide attempt or other suicidal/self-harm crisis, there is no outpouring of compassion and support.

You stand alone. Terrified. Silent.

And as the impacted friends and families of suicide attempt survivors and others who experience any suicidal crisis, you struggle to find your way free from the anxiety and stress, darkness and anger, frustration and a sense of helplessness – crushed by a sense of being dismissed and marginalized when you do reach out for help to find the path to freedom from that paralyzing fear.

Welcome to the world of millions of emotionally #impacted families. In July 2014, the National Action Alliance for Suicide Prevention published The Way Forward: Pathways to hope, recovery and wellness with insights from lived experience which included the caution that we need to create programs to support the “care-givers” – aka #ImpactedFamily of attempt survivors. A local project in southeastern Massachusetts began in December 2013 before that paper was released. A self-care workbook and companion workshop were developed for #impactedfamily – Is This the Night: Finding Inner Peace during the post-production of the attempt survivor documentary, A Voice at the Table (2014).

 There was no national response. There is now.

Join us for the launch of #SPSMCHAT 2.0 Reboot! Join the Call to Action! And learn who are #impactedfamily members. What resources exist? Why should you care? Because the odds are, that until we turn the tide of suicide attempts & losses, you may one day find yourself sharing the journey with other #impactedfamily…

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Annemarie Matulis chairs the American Association of Suicidology’s new Impacted Family & Friends Committee (IFFC). She is an #impactedfamily member, a loss survivor, a trainer and educator, curriculum developer, public speaker, author, documentary producer, Founder of A Voice at the Table, the movement – her public health advocacy and activism span more than 30 years and include domestic violence, substance abuse and suicide prevention.

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Did you know that there are some new kids on the block at the #SPSMCHAT 2.0 Reboot! table? Joining Annemarie Matulis in this adventure is Tracey Pacheco Medeiros.

Tracey is a suicide attempt survivor who loves motorcycles and Minions. As a certified peer specialist, she shares her lived experience with those who are voluntarily admitted  to  a crisis response unit in southeastern MA. An avid gamer, public speaker, and youth advocate, Tracey is also the co-author of a self-published, conversational memoir, Embracing Imperfection, the healing journey of a suicide attempt survivor that she dedicated to teens. Tracey co-developed and facilitates a monthly wellness check workshop series that brings attempt and loss survivors further along the healing path to the same table. An AAS member, she was awarded 3rd place in the 2017 Paul Quinnett Essay Contest with her “Wicked Awesome Wish List.”

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Kate Spade. The CDC Report. Anthony Bourdain. #SPSM reflect on changes on our media responses after 5 years. 5/10/18, 9pCT.

Kate Spade. The CDC Report. Anthony Bourdain.

Chances are, if you are in the SPSM community you have been participating in media about one or all of these events in the last week.

Five years ago, when we launched SPSM, we were united around the mission to help experts and stakeholders in suicide prevention become more knowledgeable and skillful at the intersection of suicide, new media, and technology innovation.

As we finish Season 5, and as we sunset our current programming structure (to pave the way for launching new things), we had planned for this SPSM to both look at how far we have come, in terms of the skills and savvy of our community, in the service of our missions in suicide prevention.

And it is clear that things have changed. Chris Maxwell will be discussing the media appearances of many of our SPSM community members in the past week.

Given how far the suicide prevention community has come, where do we want to go next? As SPSM prepares for our next big step forward, what should we do next? Let’s talk about that LIVE here:

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@SeanYoungPhD chats #twitter #suicide #research and #ethics with #SPSM, 6/3/18, 9pCT. #CLPsych #HITsm #mhsm

Dr Sean Young chats with #SPSM about what happens when you start a study on social media signals for sleep health, and veer into the topic of suicide…only to find out that the IRB isn’t experienced with this issue. Join us 6/2/18, 9pCT.

Check out the abstract (or read the whole thing here:

“Due to the popularity of social media, researchers are increasingly conducting studies that monitor and analyze people’s health-related social media conversations. Because social media users can post about any topic at any time, no known best ethical practices exist as to whether and how to monitor participants’ posts for safety-related issues that might be unrelated to the study, such as expressions of suicidal intentions. This is a case study during a social media-based study on sleep and activity among freshman undergraduate students, where we by chance noticed that a student was using social media to express suicidal intentions. Although we connected the student to student psychological services in order to receive treatment, we encountered a number of barriers that initially prevented this from occurring, such as institutional review board and regulatory practices related to lack of experience with these newer types of studies. We discuss the implications of this experience for future research.”

Watch us LIVE here:

Sean Young

Sean Young, PhD is Associate Professor in the UCLA Department of Family Medicine and the Executive Director of the University of California Institute for Prediction Technology (UCIPT) and UCLA Center for Digital Behavior. Trained as a behavioral and social psychologist, Dr. Young’s research focuses on using technologies and artificial intelligence/big data to change and predict people’s health behaviors. He was the PI of the Harnessing Online Peer Education (HOPE) intervention studies, showing that online communities and technologies that integrate HOPE lead to sustainable health behavior change in areas such as HIV, opioid use, and mental/behavioral health. He co-created a technology platform (healthcheckins.com) being tested among UCLA Health System patients to improve their behavioral and mental health. Dr. Young is the author of the #1 Wall Street Journal Best-Selling book, Stick with It (2017), on the science behind lasting change, published by HarperCollins.

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@LegalLevity, aka Hudson Harris chats #suicide prevention and #tech with #SPSM, 5/27/18, 9pCT.

Hudson Harris, @LegalLevity, chats with #SPSM about all things tech, data governance, and privacy, 5/27/18. You can check out his blog, here.

Watch us LIVE here:

hudson harris

Chief Engagement Officer of Harris Logic, Hudson Harris is a privacy advocate and mental health champion who is driven to improve the availability and effectiveness of mental health services through technology and data. He is an avid writer; national speaker on privacy and information sharing; and a passionate woodworker.

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#SPSM chats #13RW Season 2: Same #suicide scene, new #triggerwarning, new #toolkit. 5/20/18, 9pCT

As 13 Reasons Why launches season 2 (premiere was delayed, due to the most recent school shooting) the suicide prevention community launches a new toolkit and talking points. The series added trigger warnings and resources to each episode (great!) and also replayed the entire graphic suicide scene from season 1 (ugh).

When considered as a TV series, the reviews are rather pointed. According to Vanity Fair:

“As the second season careens toward a conclusion that was already heavily hinted at in the first season finale, it becomes increasingly clear that 13 Reasons Why isn’t about uncovering trauma, but perpetuating provocation. We knew, in all likelihood, that this would happen; so many breakout shows struggle to land their second seasons. But most of those shows aren’t about teen suicide and sexual assault—and while the second season of 13 Reasons Why swears it’s even more aware of its sensitive material, it’s also even more exploitative than the first.”

When we consider the suicide prevention community’s skill with engaging the national conversation connected to 13 Reasons Why, it appears we have leveled up. Last season’s release left us sorting an internal conflict. We want suicide, as a topic, engaged by the media, and at the same time, we don’t want this subject treated irresponsibly or, as Vanity Fair put it, “exploited.” It seems many organizations found their sea legs with 13RW this time around. Let’s talk about that, LIVE:

 

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#SPSM podcast joins #GeekTherapy network (thanks @JosueACardona), and how @ShaneDawson got us shook this week, 5/12/18, 9pCT.

Sometimes things don’t go quite as planned…

We had good reason to believe our plans to convert SPSM chat video into podcasts would be well underway by 5/12/18, and we’d be ready for you to subscribe. Josue Cardona met with the SPSM production team, and we “missed it by that much.” We are still figuring out the process, and will have some podcasts ready for release soon.

Happily, Josue is with us this week to chat about joining the Geek Therapy network, and his thoughts on social media strategy for mental health.

And, who is Shane Dawson? What are we learning about new media from him after his break out videos with Grav3yardgirl this week?

Watch us LIVE here:

Josue

Josué is an engineer, therapist, and coach and founder of Geek Therapy, a website and community that celebrates how Geek culture can be used for good. He is currently hosts a few podcasts psychology, mental health, technology, and gaming on the Geek Therapy Network of podcasts. He teaches how to use digital tools for behavior change at Digitally Understood.

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Fitbit, #suicide risk, prevention, and prediction: #SPSM chats 5/6/18, 9pCT.

SPSM chats about passive tracking devices/apps, such as Fitbit, and how that data may be related to detecting/predicting suicide risk, and preventing suicide attempt/death, 9pCT.

Fitbit has been entering the medical device landscape, and for excellent business reasons. Snidely referred to as “Quitbit,” many devices that are soley activity trackers have high abandonment rates. For this reason, Fitbit has chosen mental health as a development area for it’s product as a medical device. what does this mean for suicide prevention?

Questions we’ll be discussing on SPSM:

  • Is activity data alone useful in suicide research and prevention/intervention? If so, how?
  • Given high device abandonment rates, what are strategies for increasing adherence long enough to get valuable data for research and monitoring?
  • And, how such devices be gamified or otherwise enhanced for intervention?

On a related note, did you know that Fitbit data can be donated at OurDataHelps.org? You do now! We’ll chat about this, too, on #SPSM

Chat LIVE here:

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